This is the most important piece of work I've ever done in my life. We need better treatments for people with rarer illnesses and better access to clinical trials. We are looking at ways that all our friends and all of Chloe's friends can help with this piece of work.
Huge thanks to Paul Burstow MP who arranged this meeting. A really decent man!! Gives me faith in politicians again. And thanks yet again to the tireless work that the fantastic Teenage Cancer Trust continues to do in Chloe's name.
IMHO the life of a child or young person is worth more than anything else in the World. We need to prioritise treatment for young people with serious illnesses. Unbelievably this doesn't seem to happen at the moment.
I'll keep you posted.